List of Organizations

Resources and Professional Organizations

• ABLEDATA
• Children of Aging Parents
• The Developmental Disabilities Nurses Association
• LiveAbled
• Med Help International
• Medicare
• National Association of Health Care Assistants
• National Association of Home Care and Hospice
• National Association of Professional Geriatric Care Mangers
• National Gerontological Nursing Association
• National Private Duty Association
• National Family Caregivers Association 
• Private Duty Home Care Association
• Well Spouse Association
• National Women’s Health Information Center

Aging

• AARP

Alzheimer’s

• The Alzheimer’s Association
• Alzheimer’s Foundation of America
• Alzheimer Daily News

Autism

• Autism Society of America
• Autism Information
• Autism Speaks
• Unlocking Autism
• National Autism Association
• Autism Help Network

Bowel (Fecal) Incontinence

• International Foundation for Functional Gastrointestinal Disorders

Cancer

• American Cancer Society

Cerebral Palsy

• United Cerebral Palsy Association (UCP)
• Centers for Disease Control and Prevention

Continence

• National Association for Continence
• Simon Foundation for Continence

Cystic Fibrosis

• Cystic Fibrosis Foundation

Developmental Disabilities

• The ARC of the United States
• National Association for Down Syndrome
• National Down Syndrome Society

Diabetes

• American Diabetes Association
• National Diabetes Information Clearinghouse

Disabilities

• Easter Seals                                                                            
• March of Dimes
• National Dissemination Center  for Children With Disabilities
• National Organization on Disability

Multiple Sclerosis

• National Multiple Sclerosis Society
• National Multiple Sclerosis Association of  America   

Muscular Dystrophy

• Muscular Dystrophy Association
• National Institute of Neurological Disorders And Strokes (NINDS)   

Parkinson’s Disease

• American Parkinson Disease Association.
• Parkinson’s Disease Foundation
• National Parkinson Foundation
• Michael J. Fox Foundation for Parkinson’s Research

Prostate Cancer/ Prostatitis

• National Prostate Cancer Coalition
• National Cancer Institute
• Prostatitis Foundation

Rare Disorders

• NIH- Office of Rare Diseases

Rett Syndrome

• International Rett Syndrome Association

Spina Bifida

• Spina Bifida Association of America

Spinal Cord Injuries

• National Spinal Cord Injury Association

Stroke

• American Stroke Association
• National Stroke Association
• National Institute of Neurological Disorders and Strokes

Urologic Disease

• American Foundation for Urologic Disease
• National Kidney and Urologic Diseases Information Clearinghouse

Women’s Health

• National Women’s Health Information Center

Books:

The Urinary Incontinence Sourcebook     Diane Newman, MNC, FAAN 

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